A series of unfortunate events…

I think most of the blog posts on here are when my Pain Management fails. It’s not through self-pity, but because at those instances you really have to focus on management and run through the techniques you know to apply them. Right now I’m on the tail end of a couple of weeks of unfortuante events and I’m, well, ouch and trying to sort out how to deal with it without resorting to myriads of opioids.

When running through the techniques and applying them, it brings to mind some odd, quick-fix things that can help. There’s a few here coming from my experience. Of course, as ever, the are always limited by what the pain sufferer can physically do, but it is worth making the effort.

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Messing up: a cascade

I’ve just come back from a few days away which involved a couple of key meetings and a games day. I’d have to stay over either side, of course, but the meeting and day seemed to be worth it. Further, I thought I could manage it properly from a pain viewpoint but, frankly, I was wrong.

I am now in shed loads of pain.

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Added the Pain, Medication and Constipation chapter

I’ve been heavily at work putting up what I can and have reached as far as the main chapter on medication – analgesia, and the like. It is a long chapter, not just due to the history but due to the subject matter, so has been split into multiple sections.

See Pain, Medication and Constipation

Breakthrough Pain

I missed the Creative Non-Fiction seminar yesterday due to breakthrough pain. This is pain that somehow gets through all the training, all the routines, all the distraction and all the painkillers. For anyone suffering Chronic Pain it is a frustrating phenomenon that has to be accepted and dealt with to make sure it is kept to the minimum. If the breakthrough pain is not brought under control you find yourself falling back into permanent, uncontrolled pain.

That control is not easy to reassert.

In my case it means swallowing my pride, reaching for the more powerful opioids and making sure that all the relaxation, meditation and transference exercises are brought to the fore. Whilst some rest is really useful to let the worst of the pain die down and the analgesics take effect, over the course of the day resting becomes both exhausting and ineffective: exhausting because I have to focus on the exercises all the time; ineffective because that focus is impossible to keep up for very long.

So what to do?

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Little bits at a time…

I was struck recently at how slow progress on First Drop was, but then realised that I’d been thrown by a number of other, smaller projects, restarting the MA (which takes me a lot of time) and playing about with Pregabalin.

On the upside, the projects have been useful and fun, ranging from writing (lots – and various), attending the local Marlborough Literary Festival (whilst the content of which was excellent, it was a show I found disability-hostile in the extreme, even being shouted at by one organiser who obviously didn’t give a monkeys about disabled people and stability on stairs), attending the monthly Hampshire Writer’s Society meetings at Winchester University (they have some really interesting guest speakers) and a Writing Group at Salisbury Library (Mondays, 10:15), and reading (also a fair bit, including attending a local reading group at Salisbury Library).

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A fantastic breakthrough…

I recently saw this report on a blood test for depression in one of my science feeds.  What many may not know is that severe depression is an often accompaniment to Chronic Pain, in all its forms, as dealing with the pain can be exhausting.

Why is this so important, then?

Simply because it pushes back against the taboo surrounding depression, it finally says: ‘depression is a real illness, not fake’. For many, depression doesn’t exist as an illness, its just someone’s attitude of mind, laziness or someone being ‘weak’. With a blood test, depression becomes a disease or infection like anything else. What’s more, the blood test reveals the probably severity of depression and gives some idea of the best way to handle it.

All of which adds up to a fantastic breakthrough. I hope it is available soon.